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Resource Directory

Last Updated On: 09/28/2018
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Spina Bifida Association Of Western Pennsylvania

SBAWP

Organizational Information

Vision, Mission and/or Purpose of Organization

The Spina Bifida Association of Western Pennsylvania is committed to improving the quality of life for people with Spina Bifida and their families by providing a continuum of support services, education and advocacy

Legal Structure

Non-profit corporation

Contact Information

Key Leader(s)

Rebecca Crim -  Director of Development
7249349600
7249349610
rcrim@sbawp.org
Sally A Bayuk -  Executive Director
7249349600
7249349610
sbayuk@sbawp.org

Contact Person(s)

Sally A Bayuk - Executive Director
7249349600
7249349600
sbayuk@sbawp.org

Contact Number(s)

724.934.9600

800.243.5787 - Toll-free

Contact Email(s)

info@sbawp.org

Web Addresses

www.sbawp.org

Primary Address

Administration Office
3000 Stonewood Dr.
Suite 100
Wexford, PA, 15090

Service Information

Service Area

Western Pennsylvania

Service Description

Family-School Partnership Program - a program that provides information and consultation to parents to help them advocate for their children in school

The Gatehouse Life Skills & Pre-Vocational Training Program - a residential center for adults with disabilities to assist with the transition from home to greater self-sufficiency and community integration. Participants attend college or vocational school, are employed or volunteer while residing at The Gatehouse

BluePrints Program The BluePrints Program provides parents the opportunity to learn and network and children the opportunity to play in a safe and nurturing environment!

Wellness Program - Spina Bifida Association of Western Pennsylvania Wellness Coordinators teach members important self-care techniques and help them navigate through a complex health care system.

Weekend Retreat programs at the Family Retreat Center - held year-round during the camp's off season, the program focuses on socialization, leadership, and a continuation of life skills training and personal self-care.

Summer Developmental Programs at the Family Retreat Center -a therapeutic, residential camping program held in July for individuals ages 6-adult

Community Services Program - a PA licensed Home Care Agency, supports adults with disabilities to live independently in the community with Personal Assistance Care (PAS) services. Other program components include Community Integration through planned outings and other group activities to address social, recreation, and cultural needs.

Keywords

spina bifida, transition, camp, training, support, programs,

Available Hours

8:00 am - 4:30 pm / Monday through Friday Answering machine available 24 hours

Fees/Cost for Services

Varies depending on the program. Limited scholarships available for summer developmental camping programs.

Eligibility Requirements

Individuals of any age with spina bifida, hydrocephalus or related neural tube defects.

Miscellaneous Information

Handicap Accessibility

Yes

Speaker Available

Yes

Volunteer Use

Yes

Volunteer Need

Yes

Volunteer Description

Individuals ages 16 and older may volunteer for weekend retreats and summer camp to assist participants with disabilities or perform support services. Volunteer opportunities are also available for job coaching, study hall assistance, and clerical assistance.