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Spina Bifida Association Of Western Pennsylvania
Vision, Mission and/or Purpose of Organization
The Spina Bifida Association of Western Pennsylvania is committed to improving the quality of life for people with Spina Bifida and their families by providing a continuum of support services, education and advocacy
800.243.5787 - Toll-free
Family-School Partnership Program - a program that provides information and consultation to parents to help them advocate for their children in school
The Gatehouse Life Skills & Pre-Vocational Training Program - a residential center for adults with disabilities to assist with the transition from home to greater self-sufficiency and community integration. Participants attend college or vocational school, are employed or volunteer while residing at The Gatehouse
BluePrints Program The BluePrints Program provides parents the opportunity to learn and network and children the opportunity to play in a safe and nurturing environment!
Wellness Program - Spina Bifida Association of Western Pennsylvania Wellness Coordinators teach members important self-care techniques and help them navigate through a complex health care system.
Weekend Retreat programs at the Family Retreat Center - held year-round during the camp's off season, the program focuses on socialization, leadership, and a continuation of life skills training and personal self-care.
Summer Developmental Programs at the Family Retreat Center -a therapeutic, residential camping program held in July for individuals ages 6-adult
Community Services Program - a PA licensed Home Care Agency, supports adults with disabilities to live independently in the community with Personal Assistance Care (PAS) services. Other program components include Community Integration through planned outings and other group activities to address social, recreation, and cultural needs.
spina bifida, transition, camp, training, support, programs,
8:00 am - 4:30 pm / Monday through Friday Answering machine available 24 hours
Fees/Cost for Services
Varies depending on the program. Limited scholarships available for summer developmental camping programs.
Individuals of any age with spina bifida, hydrocephalus or related neural tube defects.
Individuals ages 16 and older may volunteer for weekend retreats and summer camp to assist participants with disabilities or perform support services. Volunteer opportunities are also available for job coaching, study hall assistance, and clerical assistance.